Social Media Link Archive

Find all the archived links metioned in our Instagram posts below:

2021

FDA Alert: Phillips Respironics Ventilators Recall

If it was possible to create a vaccine to prevent COVID-19 in a year, how come we still have not cured Myotonic Dystrophy?

Meet the DM Drug Developers Webinar Series

Ask-the-Expert Webinar Series

Get Active & Healthy with Adaptive Yoga

Watch our International DM Awareness Day Program!

Rally Support for the International Myotonic Dystrophy Awareness Day US Senate Resolution

Ask-the-Expert: DM and Anxiety

AMO Pharma Awarded Innovation Passport for  AMO-02 (Tideglusib) 

Avidity Biosciences - Meet the DM Drug Developers

MDF Applauds U.S. Senator Tim Kaine for Leading Resolution Designating Sept 15th International Myotonic Dystrophy Awareness Day

Manitoba, Canada, proclaims Sept 15 International Myotonic Dystrophy Awareness Day!

Avidity Biosciences - FDA Grants Orphan Drug Designation for AOC 1001

Family Day Happy Hour - July 24th

Caregiver Virtual Support Group Meeting

Harmony Biosciences announces Phase 2 Clinical Trial for DM1

Logo Announced - International Myotonic Dystrophy Awareness Day

Watch the Recording! Ask-the-Expert: Speech, Language, and Swallowing with DM

Welcome Kate Beck, Special Projects Manager

Meet the DM Drug Developers: ARTHEx Biotech

Watch Meet the DM Drug Developers - Lupin Neurosciences

Research Fellow Feature: Maya Gosztyla

Dr. Richard Moxley, Emeritus Member of the MDF Scientific Advisory Committee

Watch the Recording! Ask-the-Expert: Your Heart & DM

Community Logo Vote - International Myotonic Dystrophy Awareness Day

Watch the Recording! Meet the DM Drug Developers: Biogen & Ionis Pharmaceuticals

Join the May Movement Challenge 2021

Spring Update from MDF’s CEO

Watch the Recording! Ask-the-Expert: Gastrointestinal Tract (GI)

Welcome Mike Knaapen, MDF's New Program Director!

International Myotonic Dystrophy Awareness Day - Logo Design Contest

Research Survey - Medicine packaging configuration and flavor profile preferences

Watch the Recording! - Meet the DM Drug Developers: Expansion Therapeutics

My Dispatch: DM News for the Myotonic Dystrophy Community - March 2021

Thank You Clare May! - MDF Support Group Facilitator

Watch "Ask-the-Expert: Respiratory Issues & DM"

Share Your Thoughts on the Future of MDF - Enter for a chance at a $100 Gift Card!

Research Survey - Medicine packaging configuration and flavor profile preferences

Webinar - Ask-the-Expert: Respiratory Issues & DM

International Myotonic Dystrophy Awareness Day - September 15th

International Myotonic Dystrophy Awareness Day - Logo Design Contest

A Journey with Movement & Exercise - Abilities Virtual Experience

Webinar - Meet the DM Drug Developers: AMO Pharma

Webinar - Ask-the-Expert: Exercise & Movement

MyDispatch - News for the DM Community - February 2021

DM1 Prevalence Study Published and Available

Caregiver Virtual Support Group Meeting - Feb 2021

Webinar - Meet the DM Drug Developers: Dyne Therapeutics

Webinar - MDF Advocate Training - Feb 2021

MDF 2020 Above & Beyond Award: Angie Wiggans

Webinar - Ask-the-Expert Series

Webinar - Meet the DM Drug Developers

My Dispatch: News for the DM Community - January 2021

MDF is Hiring! - Program Director

mRNA Vaccines with Dr. John D. Lueck via SF Quarantine

Positive Thinking - Mayo Clinic

Resource - Myotonic Dystrophy: Find a Doctor / Specialist

Genetic Treatment Plus Exercise Reverses Fatigue in Mice with Muscle Wasting Disease

2020

Tom McPeek: Staying Positive

Year End Message from Our CEO

Meet the DM Drug Developers: AMO Pharma

COVID-19 Vaccines and the DM Community

Webinar - DM Strength Training with Rachel Kahn (Part 4 of 4)

MDF Grassroots Fundraising

Webinar - DM Strength Training with Rachel Kahn (Part 3 of 4)

Donate Towards Myotonic Dystrophy Care and a Cure

Webinar - DM Strength Training with Rachel Kahn (Part 2 of 4)

Get Ready for #GivingTuesday on December 1st!

Webinar - DM Strength Training with Rachel Kahn (Part 1 of 4)

Inspector General Warns About New Social Security Benefit Suspension Scam

Resource - Upcoming Virtual Support Groups

My Dispatch: News for the DM Community - November 2020

#SocksOnChallenge

MyDispatch - DM News for the Myotonic Dystrophy Community!

Session Recordings from the MDF 2020 Virtual Conference!

Ingraham Family Story - How a Couple that Dreamed of Travel Found a Way Around DM

Myotonic Dystrophy Grant Opportunities

Webinar - Digital Academy - DM Video Catalog

What does the Myotonic Dystrophy Foundation Mean to You?

Community Advocate Participates in 3rd PRMRP Review

Resource - The Guide for Adults Affected by Juvenile-onset Myotonic Dystrophy and their Caregivers

Learn about MDF's incredible Support Group Facilitators

Myotonic Dystrophy Foundation Brand Refresh

Resource - Anesthesia Quick Reference Guide - Share it with your clinician and anesthesiologist!

50 Things to Do at Home in the Summer (That Don’t Require Any Outdoor Space)

Sign Up for Emails! - Monthly Dispatch Newsletter

DM Community Happy Hour - BYOB!

What does the Myotonic Dystrophy Foundation mean to you?

Get your story featured on Myotonic.org!

Random Trivia Generator

Resource - Care Guidelines for Speech and Language Pathologists Treating Adults and Children with Myotonic Dystrophy

Bouquets to Art - de Young Museum

Resource - Exercise Guide for People Living with Myotonic Dystrophy

MDF Grassroots Fundraising Toolbox

My Dispatch: News for the Myotonic Dystrophy Community - July 2020

Care for Caregivers: Skills for Resilience Through Meditation & Mindful Movement

Webinar - An Introduction to Resources and Programs for Myotonic Dystrophy

Join the Myotonic Dystrophy Family Registry

Myotonic Dystrophy Drug Development Pipeline - Ben Porter at Newcastle University

PRMRP: Advocate for Myotonic Dystrophy Research Funding!

A Mother's Story - Elizabeth Florence

Healthy Recipes - American Heart Association

Webinar - Friday Afternoon Webinar Recordings

Five Ways to View Coverage of the Coronavirus - American Psychological Association

Resource - Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy

Overnight oats 4 ways - Kaiser

Resource - Nutrition Guide for People Living with Myotonic Dystrophy

Webinar - Myotonic Dystrophy and the Brain: Causes, Effects and Treatment

Free Audio Books - Audible

Webinar - An Introduction to Mindfulness & Guided Meditation

Resource - Health Insurance Considerations for People Living with Myotonic Dystrophy in the United States

How Myotonic Dystrophy Affects Your Body - Body Systems Tool

Webinar - Multi Systemic and Cognitive Aspects of Myotonic Dystrophy Type 2

Webinar - Exercise for the DM Community

PREFER: Patient Preferences Survey

#MyGratitude Moments

Webinar - Gene Editing For DM

Cooking Video Contest Winners!

Resource - Role of Physical Therapy in the Assessment and Management of Individuals with Myotonic Dystrophy

Webinar - Beyond Activities of Daily Living (ADLs): Strategies for Life Modifications, Socializing and More during COVID-19

Research Opportunity on COVID-19: A Survey from the University of Rochester Medical Center

Virtual Chair Yoga with Ellen Shapiro

MDF Digital Academy

MDF Friday Afternoon Webinar Series

Resource - Anesthesia Guidelines for Myotonic Dystrophy

Webinar - Caring for the Caregiver

Daily Mental Health Check - Greater Good Magazine

Webinar - Food Preparation for the DM Community

Webinar - How Common is DM in the United States? Findings from the Recent Prevalence Study

Creamy Roasted Carrot Soup - Cookie+Kate

Webinar - Sleep and Breathing Support for Myotonic Dystrophy during the COVID-19 Pandemic

Virtual Tours - Google Arts & Culture

Virtual Concerts - NPR

Webinar - Myotonic Dystrophy: An Overview and Update

MDF Digital Academy

Make Your own Face Covering - CDC

Learn at Home - Scholastic

Meditation - Mayo Clinic

Virtual Tours - US National Parks

Chair Yoga - Glass Half Full

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